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Neuronal Ceroid Lipofuscinosis and Associated Sleep Abnormalities

NCT01966757 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 57

Last updated 2016-07-26

No results posted yet for this study

Summary

Neuronal Ceroid Lipofuscinosis (NCL) also known at Batten's disease is the most common neurodegenerative disorder in children. Families often report the patient has a sleep disturbance. This is a questionnaire to be completed by the family to better understand the sleep pattern and sleep difficulties experienced by individuals who have been diagnosed with NCL.

Conditions

  • Neuronal Ceroid Lipofuscinosis
  • Batten's Disease

Sponsors & Collaborators

  • Massachusetts General Hospital

    collaborator OTHER

  • Nationwide Children's Hospital

    lead OTHER

Principal Investigators

  • Lenora M Lehwald, MD · Nationwide Children's Hospital

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2013-07-31
Primary Completion
2016-07-31
Completion
2016-07-31

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01966757 on ClinicalTrials.gov