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Health Needs of Patients With Kallmann Syndrome

NCT01914172 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 249

Last updated 2017-09-29

No results posted yet for this study

Summary

Kallmann syndrome (KS), also known as congenital hypogonadotropic hypogonadism (CHH), is a rare endocrine disorder that is characterized by failure to undergo puberty combined with infertility. KS/CHH patients face a number of psychosocial burdens related to delays in diagnosis, inadequate access to expert care, and lack of information about the condition. As such, there is some evidence to suggest that KS/CHH patients have unmet health needs. This study aims to identify the needs of patients and understand the issues that must be overcome to achieve improved health and quality of life.

Conditions

  • Kallmann Syndrome
  • Congenital Hypogonadotropic Hypogonadism
  • Idiopathic Hypogonadotropic Hypogonadism

Interventions

OTHER

online questionairres

see group descriptions

Sponsors & Collaborators

  • University of Lausanne

    collaborator OTHER

  • Centre Hospitalier Universitaire Vaudois

    lead OTHER

Principal Investigators

  • Andrew Dwyer, PhD, FNP-BC · Centre Hositalier Universitaire Vaudois (CHUV)

Eligibility

Min Age
18 Years
Max Age
75 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2013-07-31
Primary Completion
2014-03-31
Completion
2017-09-27

Countries

  • Switzerland

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01914172 on ClinicalTrials.gov