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Policy on Optimal Epilepsy Management

NCT01762215 · Status: UNKNOWN · Phase: NA · Type: INTERVENTIONAL · Enrollment: 200

Last updated 2013-01-07

No results posted yet for this study

Summary

This study examines the use of an online social media platform (PatientsLikeMe) to assist Veterans with epilepsy. The hypothesis is that the online social media platform, PatientsLikeMe, will improve selected patient-reported outcomes on perceived self-management skills for patients who engage in the website functions.

Conditions

Interventions

BEHAVIORAL

PatientsLikeMe.com

PatientsLikeMe (PLM, www.patientslikeme.com) is an established medical social networking website that encourages patients with chronic medical conditions to voluntarily share their story and seek support from a common community. Additionally, PatientsLikeMe is actively exploring opportunities to allow patients to report and track important medical data points with the hope that this will improve their longitudinal care. PatientsLikeMe has developed custom functionality for the epilepsy population including seizure tracking, peer support, and printable doctor visit support sheets.

Sponsors & Collaborators

  • San Francisco Veterans Affairs Medical Center

    collaborator FED

  • Veterans Administration Epilepsy Centers of Excellence (ECoE)

    collaborator FED

  • University of California, San Francisco

    collaborator OTHER

  • PatientsLikeMe

    collaborator OTHER

  • UCB Pharma

    collaborator INDUSTRY

  • Northern California Institute of Research and Education

    lead OTHER

Study Design

Allocation
NA
Masking
NONE
Model
SINGLE_GROUP

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2012-10-31
Primary Completion
2013-10-31
Completion
2013-12-31

Countries

  • United States

Study Locations

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Entities

Diseases
Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01762215 on ClinicalTrials.gov