Primary Care Transition Study
NCT01750892 · Status: COMPLETED · Phase: NA · Type: INTERVENTIONAL · Enrollment: 43
Last updated 2023-10-13
Summary
This study is looking at ways to help young people with chronic health conditions take better care of their health and find an adult doctor.
Conditions
- Chronic Health Condition
- Cognitive Disability
Interventions
- BEHAVIORAL
-
REACH for Independence
REACH for Independence is a transition and self-care skill-building peer support group led by a social worker. It is comprised of two 2.5-hour group sessions where participants participate in activities designed to teach self-care, self-advocacy and improve transition to adulthood skills.
- BEHAVIORAL
-
Transition Consult
The transition consult is a 1-on-1 visit with an MD and social worker. At the consults, participants will receive individualized information related to their unique medical and psychosocial needs and support related to issues relevant to their gaining healthcare independence and finding an adult doctor, such as accommodations, transportation, insurance and finances. After the consult, this group will have access to a transition coordinator who can help with any transition-related problems that may occur.
- OTHER
-
Study Materials
The Study Materials include a Care Binder, a Resource list, an Adult Doctor List and a Wallet Card. The Care Binder is an organizational tool to help patients with special healthcare needs manage and track important information related to their health and medical care. The Resource list has information about important community resources. The Adult Doctor List provides information about finding an adult primary care provider. The Wallet Card is a sheet for tracking important medical and personal information.
Sponsors & Collaborators
-
Children's Hospital of Philadelphia
lead OTHER
Principal Investigators
-
Nadja Peter, MD · Children's Hospital of Philadelphia
-
Oana Tomescu, MD, PhD · Children's Hospital of Philadelphia
Study Design
- Allocation
- RANDOMIZED
- Purpose
- SUPPORTIVE_CARE
- Masking
- NONE
- Model
- PARALLEL
Eligibility
- Min Age
- 19 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2012-10-31
- Primary Completion
- 2014-07-31
- Completion
- 2014-07-31
Countries
- United States
Study Locations
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