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Assessing the Patient Experience in Cancer Care

NCT01621295 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 408

Last updated 2016-01-20

No results posted yet for this study

Summary

Communication is an important component of comprehensive cancer care impacting patient satisfaction, adherence, and quality of life. The wide array of issues addressed in cancer clinical interactions makes communicating about a broad range of topics (including quality of life, communication, symptom control, complementary/alternative therapies, costs, treatment burden, prognosis, anxiety, side-effects, sexual function, palliative care options, etc.) especially interesting and potentially challenging. Some of these topics may not be routinely addressed in the clinical interaction or may require consultative support from other members of the comprehensive cancer care team. One frequently overlooked critical element in research on communication between cancer clinicians, their patients, and their primary care clinicians is describing real-time consultations between patients and their clinicians. These interactions provide rich material for assessing key psycho-social dynamics and identifying issues that patients find important in their care. In order to devise systems of care that optimize the patient experience, it is critical that clinicians and researchers understand, appreciate, and systematically characterize the richness and complexity of the decision-making process in routine cancer consultations between cancer patients and their treating clinicians. This study seeks to assess the patient experience in cancer care by observing patients and their physicians in their clinical interactions and following them for several months to see how their care went. By describing in-depth the conversations and experiences of patients in these clinical interactions, this study will lay the foundation for practice-based interventions to optimize patients' interactions with their cancer care teams.

Conditions

  • Brain Neoplasm
  • Breast Neoplasm
  • Endocrine Gland Neoplasm
  • Gastrointestinal Neoplasm
  • Genitourinary Neoplasm
  • Gynecological Neoplasm
  • Head and Neck Neoplasm
  • Lung Neoplasm
  • Melanoma
  • Sarcoma

Sponsors & Collaborators

  • University of Southern California

    collaborator OTHER

  • Johns Hopkins University

    collaborator OTHER

  • National Center for Complementary and Integrative Health (NCCIH)

    collaborator NIH

  • Mayo Clinic

    lead OTHER

Principal Investigators

  • Jon C Tilburt, MD, MPH · Mayo Clinic

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2012-05-31
Primary Completion
2015-09-30
Completion
2015-09-30

Countries

  • United States

Study Locations

More Related Trials

Entities

Diseases
Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01621295 on ClinicalTrials.gov