MedTrace Logo

National Lymphangioleiomyomatosis Registry, France

NCT01484236 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 200

Last updated 2025-03-13

No results posted yet for this study

Summary

RE-LAM-CE is a registry of lymphangioleiomyomatosis cases in France. its aim is to determine the incidence and prevalence of lymphangioleiomyomatosis in France, including demographic information and information concerning the timing and modalities of diagnosis.

Based on the registry, we will set up a prospective cohort of patients. The database will include detailed medical information, particularly regarding progression of the respiratory function.

Conditions

  • Lymphangioleiomyomatosis

Sponsors & Collaborators

  • Hospices Civils de Lyon

    collaborator OTHER

  • Vincent COTTIN

    lead OTHER

Principal Investigators

  • Vincent Cottin, MD · Groupe d'Etudes et de Recherche sur les Maladies Orphelines Pulmonaires, HCL

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2012-01-31
Primary Completion
2025-12-31
Completion
2026-12-31

Countries

  • France

Study Locations

More Related Trials

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01484236 on ClinicalTrials.gov