Trial Outcomes & Findings for Prophylactic Phenobarbital After Neonatal Seizures (NCT NCT01089504)

NCT ID: NCT01089504

Last Updated: 2016-02-03

Results Overview

The Bayley Scales of Infant Development (BSID) measure the mental and motor development and test the behavior of infants from one to 42 months of age. The test is intended to measure a child's level of development in three domains: cognitive, motor, and behavioral. The primary outcome is the Bayley assessment of development at 2 years of age. This is a standardized developmental exam that is normalized to the age of the child in months. The mean adjusted score is 100 with a standard deviation of 15 (higher being better) - very similar to the more familiar IQ score.

Recruitment status

TERMINATED

Study phase

PHASE4

Target enrollment

13 participants

Primary outcome timeframe

18-22 months

Results posted on

2016-02-03

Participant Flow

Participant milestones

Participant milestones
Measure
Phenobarbital
Phenobarbital, 4-5 mg/kg/day, for 4 months phenobarbital: Phenobarbital, 4-5 mg/kg/d, by mouth, for 4 months
Placebo
Placebo in a volume equivalent to active drug for 4 months placebo: Matched placebo, same volume as active drug, by mouth daily for 4 months
Overall Study
STARTED
8
5
Overall Study
COMPLETED
5
4
Overall Study
NOT COMPLETED
3
1

Reasons for withdrawal

Reasons for withdrawal
Measure
Phenobarbital
Phenobarbital, 4-5 mg/kg/day, for 4 months phenobarbital: Phenobarbital, 4-5 mg/kg/d, by mouth, for 4 months
Placebo
Placebo in a volume equivalent to active drug for 4 months placebo: Matched placebo, same volume as active drug, by mouth daily for 4 months
Overall Study
Lost to Follow-up
1
1
Overall Study
Withdrawal by Subject
2
0

Baseline Characteristics

Prophylactic Phenobarbital After Neonatal Seizures

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Phenobarbital
n=8 Participants
Phenobarbital, 4-5 mg/kg/day, for 4 months phenobarbital: Phenobarbital, 4-5 mg/kg/d, by mouth, for 4 months
Placebo
n=5 Participants
Placebo in a volume equivalent to active drug for 4 months placebo: Matched placebo, same volume as active drug, by mouth daily for 4 months
Total
n=13 Participants
Total of all reporting groups
Age, Categorical
<=18 years
8 Participants
n=99 Participants
5 Participants
n=107 Participants
13 Participants
n=206 Participants
Age, Categorical
Between 18 and 65 years
0 Participants
n=99 Participants
0 Participants
n=107 Participants
0 Participants
n=206 Participants
Age, Categorical
>=65 years
0 Participants
n=99 Participants
0 Participants
n=107 Participants
0 Participants
n=206 Participants
Sex: Female, Male
Female
5 Participants
n=99 Participants
2 Participants
n=107 Participants
7 Participants
n=206 Participants
Sex: Female, Male
Male
3 Participants
n=99 Participants
3 Participants
n=107 Participants
6 Participants
n=206 Participants
Region of Enrollment
United States
8 participants
n=99 Participants
5 participants
n=107 Participants
13 participants
n=206 Participants

PRIMARY outcome

Timeframe: 18-22 months

Population: Due to low enrollment, there was limited data available for analysis and therefore insufficient power to provide meaningful results for our primary or secondary analysis.

The Bayley Scales of Infant Development (BSID) measure the mental and motor development and test the behavior of infants from one to 42 months of age. The test is intended to measure a child's level of development in three domains: cognitive, motor, and behavioral. The primary outcome is the Bayley assessment of development at 2 years of age. This is a standardized developmental exam that is normalized to the age of the child in months. The mean adjusted score is 100 with a standard deviation of 15 (higher being better) - very similar to the more familiar IQ score.

Outcome measures

Outcome measures
Measure
Phenobarbital
n=8 Participants
Phenobarbital, 4-5 mg/kg/day, for 4 months phenobarbital: Phenobarbital, 4-5 mg/kg/d, by mouth, for 4 months
Placebo
n=5 Participants
Placebo in a volume equivalent to active drug for 4 months placebo: Matched placebo, same volume as active drug, by mouth daily for 4 months
Mean Bayley Scales of Infant Development (BSID) Score - Cognitive
87.50 units on a scale
Standard Deviation 11.90
92.50 units on a scale
Standard Deviation 26.61

SECONDARY outcome

Timeframe: 18-22 months

Population: Due to low enrollment, there was limited data available for analysis and therefore insufficient power to provide meaningful results for our primary or secondary analysis.

This part of the BSID assesses the degree of body control, large muscle coordination, finer manipulatory skills of the hands and fingers, dynamic movement, postural imitation, and the ability to recognize objects by sense of touch.

Outcome measures

Outcome measures
Measure
Phenobarbital
n=8 Participants
Phenobarbital, 4-5 mg/kg/day, for 4 months phenobarbital: Phenobarbital, 4-5 mg/kg/d, by mouth, for 4 months
Placebo
n=5 Participants
Placebo in a volume equivalent to active drug for 4 months placebo: Matched placebo, same volume as active drug, by mouth daily for 4 months
Mean Bayley Scales of Infant Development (BSID) Score - Motor
82.80 units on a scale
Standard Deviation 24.59
83.75 units on a scale
Standard Deviation 20.65

SECONDARY outcome

Timeframe: 18-22 months

Population: Due to low enrollment, there was limited data available for analysis and therefore insufficient power to provide meaningful results for our primary or secondary analysis.

Any clinical or electrographic seizures occurring between study entry and all follow-up examinations and contacts.

Outcome measures

Outcome measures
Measure
Phenobarbital
n=8 Participants
Phenobarbital, 4-5 mg/kg/day, for 4 months phenobarbital: Phenobarbital, 4-5 mg/kg/d, by mouth, for 4 months
Placebo
n=5 Participants
Placebo in a volume equivalent to active drug for 4 months placebo: Matched placebo, same volume as active drug, by mouth daily for 4 months
Number of Participants With One or More Seizures
2 participants
1 participants

Adverse Events

Phenobarbital

Serious events: 1 serious events
Other events: 6 other events
Deaths: 0 deaths

Placebo

Serious events: 1 serious events
Other events: 5 other events
Deaths: 0 deaths

Serious adverse events

Serious adverse events
Measure
Phenobarbital
n=8 participants at risk
Phenobarbital, 4-5 mg/kg/day, for 4 months phenobarbital: Phenobarbital, 4-5 mg/kg/d, by mouth, for 4 months
Placebo
n=5 participants at risk
Placebo in a volume equivalent to active drug for 4 months placebo: Matched placebo, same volume as active drug, by mouth daily for 4 months
Metabolism and nutrition disorders
failure to thrive
0.00%
0/8
20.0%
1/5
Nervous system disorders
poor quality sleep
12.5%
1/8
0.00%
0/5

Other adverse events

Other adverse events
Measure
Phenobarbital
n=8 participants at risk
Phenobarbital, 4-5 mg/kg/day, for 4 months phenobarbital: Phenobarbital, 4-5 mg/kg/d, by mouth, for 4 months
Placebo
n=5 participants at risk
Placebo in a volume equivalent to active drug for 4 months placebo: Matched placebo, same volume as active drug, by mouth daily for 4 months
Respiratory, thoracic and mediastinal disorders
apnoea
0.00%
0/8
20.0%
1/5
Nervous system disorders
convulsion
12.5%
1/8
20.0%
1/5
General disorders
Pyrexia
37.5%
3/8
20.0%
1/5
Infections and infestations
upper respiratory tract infection
0.00%
0/8
20.0%
1/5
Gastrointestinal disorders
Haematochezia
0.00%
0/8
20.0%
1/5
Skin and subcutaneous tissue disorders
seborrhoeic dermatitis
0.00%
0/8
20.0%
1/5
Gastrointestinal disorders
flatulence
0.00%
0/8
20.0%
1/5
Respiratory, thoracic and mediastinal disorders
nasal congestion
37.5%
3/8
20.0%
1/5
Skin and subcutaneous tissue disorders
rash
12.5%
1/8
0.00%
0/5
Nervous system disorders
status epilepticus
12.5%
1/8
0.00%
0/5
Nervous system disorders
poor quality sleep
12.5%
1/8
0.00%
0/5
Infections and infestations
influenza
12.5%
1/8
0.00%
0/5
Ear and labyrinth disorders
ear infection
25.0%
2/8
0.00%
0/5
Gastrointestinal disorders
gastrooesophageal reflux disease
12.5%
1/8
0.00%
0/5
Infections and infestations
sinusitis
12.5%
1/8
0.00%
0/5
Ear and labyrinth disorders
otitis media
50.0%
4/8
0.00%
0/5
Gastrointestinal disorders
vomiting
12.5%
1/8
0.00%
0/5
Infections and infestations
Croup infection
12.5%
1/8
0.00%
0/5
Infections and infestations
Candidiasis
12.5%
1/8
0.00%
0/5
Infections and infestations
Rhinovirus infection
12.5%
1/8
0.00%
0/5
Infections and infestations
Respiratory Syncytial Virus infection
12.5%
1/8
0.00%
0/5

Additional Information

Ronnie Guillet

University of Rochester

Phone: 585-275-6209

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place