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Development and Implementation of Evidence-Based Family-Oriented Support for Young Carers and Their Families in Germany

NCT00734942 · Status: UNKNOWN · Phase: NA · Type: INTERVENTIONAL · Enrollment: 150

Last updated 2008-12-23

No results posted yet for this study

Summary

The purpose of this study is to develop and implement evidence-based and family-oriented support for young carers and their families in Germany. Hypothesis is that families' own support mechanisms, combined with externally provided support that is determined by the families' specific needs, will help to overcome their burden and enable families to live in the way they wish to despite chronic illness. This will lead to a measurable increase in HRQOL of children concerned.

Conditions

  • Chronic Illness

Interventions

OTHER

support service

* professional partners for communication * befriending with other families concerned * information and education (about illness, symptoms, first aid, caring) * free-time activities and time out * homework assistance * administrative advise * support for everyday life

Sponsors & Collaborators

  • University of Witten/Herdecke

    lead OTHER

Principal Investigators

  • Sabine Metzing-Blau, Dr. · Institute of Nursing Science; Witten/Herdecke University

  • Wilfried Schnepp, Prof.Dr. · Institute of Nursing Science; Witten/Herdecke University

Study Design

Allocation
RANDOMIZED
Purpose
SUPPORTIVE_CARE
Masking
SINGLE
Model
PARALLEL

Eligibility

Min Age
8 Years
Max Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2009-01-31
Primary Completion
2009-12-31
Completion
2010-03-31

Countries

  • Germany

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00734942 on ClinicalTrials.gov