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Perspectives on End-of-Life Care for Medically-Fragile Children and Young Adults

NCT00724646 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 125

Last updated 2009-09-15

No results posted yet for this study

Summary

Hattie Larlham is a specialized long-term care facility for pediatric and young adult residents who are medically fragile and intellectually disabled, whose daily care is provided by direct care staff, Habilitation Assistants (HA), in conjunction with nurses and other direct care providers. The purpose of this study is to assess the perspectives of HA and parents/legal guardians on end-of-life care in a long-term care facility for pediatric and young adult residents who are medically fragile and intellectually disabled.

Conditions

  • Death

Interventions

OTHER

Survey

3 individual surveys

OTHER

Focus group

Focus group discussions facilitated by a psychologist

Sponsors & Collaborators

  • Akron Children's Hospital

    lead OTHER

Principal Investigators

  • Richard Grossberg, MD · Hattie Larlham Center for Disabled Children

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2009-02-28
Primary Completion
2009-04-30
Completion
2009-06-30

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00724646 on ClinicalTrials.gov