Trial Outcomes & Findings for Evaluation of Lenalidomide (REVLIMID®) to Treat Subjects With Cutaneous Lupus Erythematosus (CLE) (NCT NCT00633945)

NCT ID: NCT00633945

Last Updated: 2023-02-09

Results Overview

The Cutaneous Lupus Area and Severity Index (CLASI); range of disease activity is 0-70. Lower scores reflect less activity.

Recruitment status

COMPLETED

Study phase

NA

Target enrollment

5 participants

Primary outcome timeframe

Weeks 0 through 52

Results posted on

2023-02-09

Participant Flow

The sample size was determined by the number of study subjects for whom Celgene Corporation was willing to supply medication during and beyond the study period. It was felt that 5 study subjects would provide valuable information about the responsiveness of severe CLE to lenalidomide (REVLIMID®) and subjects' tolerability to the study medication.

Participant milestones

Participant milestones
Measure
Lenalidomide
Patients took 5 mg daily of oral lenalidomide for the initial 6 weeks. Patients who had responded at 6 weeks lowered their dose to 5 mg every other day, while non-responders were increased to a dose of 10 mg daily.
Overall Study
STARTED
5
Overall Study
COMPLETED
3
Overall Study
NOT COMPLETED
2

Reasons for withdrawal

Reasons for withdrawal
Measure
Lenalidomide
Patients took 5 mg daily of oral lenalidomide for the initial 6 weeks. Patients who had responded at 6 weeks lowered their dose to 5 mg every other day, while non-responders were increased to a dose of 10 mg daily.
Overall Study
Physician Decision
2

Baseline Characteristics

Evaluation of Lenalidomide (REVLIMID®) to Treat Subjects With Cutaneous Lupus Erythematosus (CLE)

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Lenalidomide
n=5 Participants
Patients took 5 mg daily of oral lenalidomide for the initial 6 weeks. Patients who had responded at 6 weeks lowered their dose to 5 mg every other day, while non-responders were increased to a dose of 10 mg daily.
Age, Categorical
<=18 years
0 Participants
n=99 Participants
Age, Categorical
Between 18 and 65 years
5 Participants
n=99 Participants
Age, Categorical
>=65 years
0 Participants
n=99 Participants
Age, Continuous
40.8 years
STANDARD_DEVIATION 4.82 • n=99 Participants
Sex: Female, Male
Female
4 Participants
n=99 Participants
Sex: Female, Male
Male
1 Participants
n=99 Participants
Region of Enrollment
United States
5 participants
n=99 Participants

PRIMARY outcome

Timeframe: Weeks 0 through 52

Population: Two patients were not included at week 52 because one did not respond and one had new onset proteinuria and arthralgias.

The Cutaneous Lupus Area and Severity Index (CLASI); range of disease activity is 0-70. Lower scores reflect less activity.

Outcome measures

Outcome measures
Measure
Lenalidomide
n=5 Participants
Patients took 5 mg daily of oral lenalidomide for the initial 6 weeks. Patients who had responded at 6 weeks lowered their dose to 5 mg every other day, while non-responders were increased to a dose of 10 mg daily.
Lenalidomide Nonresponder
Lack of response with CLASI
Cutaneous Lupus Area and Severity Index (CLASI)
0 weeks
21.4 units on a scale
Interval 16.0 to 26.0
Cutaneous Lupus Area and Severity Index (CLASI)
6 weeks
10.8 units on a scale
Interval 8.0 to 18.0
Cutaneous Lupus Area and Severity Index (CLASI)
12 weeks
8.6 units on a scale
Interval 1.0 to 18.0
Cutaneous Lupus Area and Severity Index (CLASI)
52 weeks
5.3 units on a scale
Interval 0.0 to 12.0

SECONDARY outcome

Timeframe: 6 weeks

CXCL10, an interferon-inducible chemokine, and immunophenotyping by immunostaining. Measurement of interferon-inducible genes from peripheral blood mononuclear cells before and after treatment.

Outcome measures

Outcome measures
Measure
Lenalidomide
n=4 Participants
Patients took 5 mg daily of oral lenalidomide for the initial 6 weeks. Patients who had responded at 6 weeks lowered their dose to 5 mg every other day, while non-responders were increased to a dose of 10 mg daily.
Lenalidomide Nonresponder
n=1 Participants
Lack of response with CLASI
Number of Participants With Change in IFN and CD4 Levels at 6 Weeks
IFN score decrease
4 Participants
1 Participants
Number of Participants With Change in IFN and CD4 Levels at 6 Weeks
CD4 decrease
4 Participants
1 Participants

SECONDARY outcome

Timeframe: Weeks 0 through 52

Population: 5 patients until week 12, 3 patients to week 52. Dropout prevented proper analysis of week 12 to 52.

General skin scores were recorded on a 10 cm visual analogue scale at each visit. At each visit on scale 0-10, 0 corresponding to worst skin condition imaginable and 10 to perfect health.

Outcome measures

Outcome measures
Measure
Lenalidomide
n=5 Participants
Patients took 5 mg daily of oral lenalidomide for the initial 6 weeks. Patients who had responded at 6 weeks lowered their dose to 5 mg every other day, while non-responders were increased to a dose of 10 mg daily.
Lenalidomide Nonresponder
Lack of response with CLASI
Physician Global Assessment (PGA) for Skin
week 0
6 units on a scale
Interval 0.0 to 10.0
Physician Global Assessment (PGA) for Skin
week 6
3 units on a scale
Interval 0.0 to 10.0
Physician Global Assessment (PGA) for Skin
week 12
3.8 units on a scale
Interval 0.0 to 10.0
Physician Global Assessment (PGA) for Skin
week 52
2 units on a scale
Interval 0.0 to 10.0

SECONDARY outcome

Timeframe: Weeks 0 through 52

Population: 5 patients until week 12, 3 patients to week 52. Dropout prevented proper analysis of week 12 to 52.

General skin scores were recorded by the patient on a 10 cm visual analogue scale at each visit by the patient. At each visit on scale 0-10, 0 corresponding to worst skin condition imaginable and 10 to perfect health.

Outcome measures

Outcome measures
Measure
Lenalidomide
n=5 Participants
Patients took 5 mg daily of oral lenalidomide for the initial 6 weeks. Patients who had responded at 6 weeks lowered their dose to 5 mg every other day, while non-responders were increased to a dose of 10 mg daily.
Lenalidomide Nonresponder
Lack of response with CLASI
Patient General Assessment (PtGA) for Skin
week 0
5.6 units on a scale
Interval 0.0 to 10.0
Patient General Assessment (PtGA) for Skin
week 6
3.6 units on a scale
Interval 0.0 to 10.0
Patient General Assessment (PtGA) for Skin
week 12
4.2 units on a scale
Interval 0.0 to 10.0
Patient General Assessment (PtGA) for Skin
week 52
0.8 units on a scale
Interval 0.0 to 10.0

SECONDARY outcome

Timeframe: Weeks 0 through 52

Population: 5 patients until week 12, 3 patients to week 52. Dropout prevented proper analysis of week 12 to 52.

Pain in skin was recorded on a 10 cm visual analogue scale at each visit by the patient. At each visit on scale 0-10, 0 corresponding to no pain and 10 to pain as bad as you can imagine.

Outcome measures

Outcome measures
Measure
Lenalidomide
n=5 Participants
Patients took 5 mg daily of oral lenalidomide for the initial 6 weeks. Patients who had responded at 6 weeks lowered their dose to 5 mg every other day, while non-responders were increased to a dose of 10 mg daily.
Lenalidomide Nonresponder
Lack of response with CLASI
Pain in Skin
week 0
4.5 units on a scale
Interval 0.0 to 10.0
Pain in Skin
week 6
2 units on a scale
Interval 0.0 to 10.0
Pain in Skin
week 12
2.5 units on a scale
Interval 0.0 to 10.0
Pain in Skin
week 52
0.5 units on a scale
Interval 0.0 to 10.0

SECONDARY outcome

Timeframe: Weeks 0 through 52

Population: 5 patients until week 12, 3 patients to week 52. Dropout prevented proper analysis of week 12 to 52.

Itch scores were recorded on a 10 cm visual analogue scale at each visit by the patient. At each visit on scale 0-10, 0 corresponding to no itch and 10 to itch as bad as you can imagine.

Outcome measures

Outcome measures
Measure
Lenalidomide
n=5 Participants
Patients took 5 mg daily of oral lenalidomide for the initial 6 weeks. Patients who had responded at 6 weeks lowered their dose to 5 mg every other day, while non-responders were increased to a dose of 10 mg daily.
Lenalidomide Nonresponder
Lack of response with CLASI
Itch in Skin
week 52
0 units on a scale
Interval 0.0 to 10.0
Itch in Skin
week 0
4.0 units on a scale
Interval 0.0 to 10.0
Itch in Skin
week 6
1.2 units on a scale
Interval 0.0 to 10.0
Itch in Skin
week 12
2.25 units on a scale
Interval 0.0 to 10.0

SECONDARY outcome

Timeframe: Weeks 0 through 52

Population: 5 patients until week 12, 3 patients to week 52. Dropout prevented proper analysis of week 12 to 52.

Fatigue scores were recorded on a 10 cm visual analogue scale at each visit by the patient. At each visit on scale 0-10, 0 corresponding to no fatigure and 10 to fatigue as bad as you can imagine.

Outcome measures

Outcome measures
Measure
Lenalidomide
n=5 Participants
Patients took 5 mg daily of oral lenalidomide for the initial 6 weeks. Patients who had responded at 6 weeks lowered their dose to 5 mg every other day, while non-responders were increased to a dose of 10 mg daily.
Lenalidomide Nonresponder
Lack of response with CLASI
Fatigue
week 0
7.25 units on a scale
Interval 0.0 to 10.0
Fatigue
week 6
3.4 units on a scale
Interval 0.0 to 10.0
Fatigue
week 12
5.25 units on a scale
Interval 0.0 to 10.0
Fatigue
week 52
3 units on a scale
Interval 0.0 to 10.0

SECONDARY outcome

Timeframe: Weeks 0 through 52

Population: 5 patients until week 12, 3 patients to week 52. Dropout prevented proper analysis of week 12 to 52.

Skindex symptoms scores are scored 1-5 and then normalized to 100, with a higher score corresponding to a worse impression. The absence of symptom impact on QoL is scored as "20" (this is represented as a 1 on the 1-5 scale. The worst impact of symptoms on QoL is 100. This is represented as a 5 on the 1-5 scale.

Outcome measures

Outcome measures
Measure
Lenalidomide
n=5 Participants
Patients took 5 mg daily of oral lenalidomide for the initial 6 weeks. Patients who had responded at 6 weeks lowered their dose to 5 mg every other day, while non-responders were increased to a dose of 10 mg daily.
Lenalidomide Nonresponder
Lack of response with CLASI
Skindex Symptoms
week 0
58.5 units on a scale
Interval 0.0 to 100.0
Skindex Symptoms
week 6
41.82 units on a scale
Interval 0.0 to 100.0
Skindex Symptoms
week 12
36.4 units on a scale
Interval 0.0 to 100.0
Skindex Symptoms
week 52
12.5 units on a scale
Interval 0.0 to 100.0

SECONDARY outcome

Timeframe: Weeks 0 through 52

Population: 5 patients until week 12, 3 patients to week 52. Dropout prevented proper analysis of week 12 to 52.

Skindex function scores are scored 1-5 and then normalized to 100, with a higher score corresponding to a worse impression. The absence of function impact on QoL is scored as "20" (this is represented as a 1 on the 1-5 scale. The worst impact of function on QoL is 100. This is represented as a 5 on the 1-5 scale.

Outcome measures

Outcome measures
Measure
Lenalidomide
n=5 Participants
Patients took 5 mg daily of oral lenalidomide for the initial 6 weeks. Patients who had responded at 6 weeks lowered their dose to 5 mg every other day, while non-responders were increased to a dose of 10 mg daily.
Lenalidomide Nonresponder
Lack of response with CLASI
Skindex Function
week 0
41.26 units on a scale
Interval 0.0 to 100.0
Skindex Function
week 6
30.42 units on a scale
Interval 0.0 to 100.0
Skindex Function
week 12
29.2 units on a scale
Interval 0.0 to 100.0
Skindex Function
week 52
4.2 units on a scale
Interval 0.0 to 100.0

Adverse Events

Group 1

Serious events: 0 serious events
Other events: 0 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Adverse event data not reported

Additional Information

Dr. Victoria Werth

University of Pennsylvania

Phone: 215-898-0168

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place