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The Health-Related Quality of Life in Patients With Hereditary Multiple Exostoses

NCT00474448 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 200

Last updated 2022-05-18

No results posted yet for this study

Summary

The purpose of this study is to assess the health-related quality of life of subjects who have Hereditary Multiple Exostoses and to develop a disease specific quality of life survey. The investigators hypothesize that there are a wide range of quality of life experiences for patients with this syndrome.

Conditions

  • Exostoses, Multiple Hereditary

Sponsors & Collaborators

  • MHE Coalition

    collaborator UNKNOWN

  • University of British Columbia

    lead OTHER

Principal Investigators

  • Christine Alvarez, MD · University of British Columbia

Eligibility

Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2007-05-31
Primary Completion
2014-02-28
Completion
2014-02-28

Countries

  • Canada

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00474448 on ClinicalTrials.gov