Trial Outcomes & Findings for Everolimus (RAD001) as Therapy for Patients With Systemic Mastocytosis (NCT NCT00449748)

NCT ID: NCT00449748

Last Updated: 2025-05-01

Results Overview

Efficacy reported as objective response. Objective response defined as change in serum tryptase level or bone marrow mast cell percentage.

Recruitment status

COMPLETED

Study phase

PHASE2

Target enrollment

10 participants

Primary outcome timeframe

Monthly for first 3 months, then every 3 months

Results posted on

2025-05-01

Participant Flow

Recruitment Period 4/11/2007 to 4/15/2009. All patients registered at The University of Texas M.D. Anderson Cancer Center.

Participant milestones

Participant milestones
Measure
RAD001
Oral RAD001 10 mg daily for 30 days
Overall Study
STARTED
10
Overall Study
COMPLETED
10
Overall Study
NOT COMPLETED
0

Reasons for withdrawal

Withdrawal data not reported

Baseline Characteristics

Everolimus (RAD001) as Therapy for Patients With Systemic Mastocytosis

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
RAD001
n=10 Participants
Oral RAD001 10 mg daily for 30 days
Age, Continuous
56 years
n=99 Participants
Sex: Female, Male
Female
6 Participants
n=99 Participants
Sex: Female, Male
Male
4 Participants
n=99 Participants
Region of Enrollment
United States
10 participants
n=99 Participants

PRIMARY outcome

Timeframe: Monthly for first 3 months, then every 3 months

Population: Analysis was per protocol.

Efficacy reported as objective response. Objective response defined as change in serum tryptase level or bone marrow mast cell percentage.

Outcome measures

Outcome measures
Measure
RAD001
n=10 Participants
Oral RAD001 10 mg daily for 30 days
Number of Participants With Objective Response
0 Participants

Adverse Events

RAD001

Serious events: 2 serious events
Other events: 10 other events
Deaths: 0 deaths

Serious adverse events

Serious adverse events
Measure
RAD001
n=10 participants at risk
Oral RAD001 10 mg daily for 30 days
Gastrointestinal disorders
Nausea
10.0%
1/10 • Number of events 1 • 3 years 7 months
Gastrointestinal disorders
Vomiting
20.0%
2/10 • Number of events 2 • 3 years 7 months
Gastrointestinal disorders
Diarrhea
10.0%
1/10 • Number of events 1 • 3 years 7 months

Other adverse events

Other adverse events
Measure
RAD001
n=10 participants at risk
Oral RAD001 10 mg daily for 30 days
Blood and lymphatic system disorders
Anemia
10.0%
1/10 • Number of events 1 • 3 years 7 months
Blood and lymphatic system disorders
Thrombocytopenia
10.0%
1/10 • Number of events 1 • 3 years 7 months
Blood and lymphatic system disorders
Neutropenia
30.0%
3/10 • Number of events 3 • 3 years 7 months
Gastrointestinal disorders
Diarrhea
40.0%
4/10 • Number of events 4 • 3 years 7 months
Gastrointestinal disorders
Mucositis
70.0%
7/10 • Number of events 7 • 3 years 7 months
General disorders
Fatigue
50.0%
5/10 • Number of events 5 • 3 years 7 months
General disorders
Fever
10.0%
1/10 • Number of events 1 • 3 years 7 months
Nervous system disorders
Headache
40.0%
4/10 • Number of events 4 • 3 years 7 months
Gastrointestinal disorders
Nausea
30.0%
3/10 • Number of events 3 • 3 years 7 months
Gastrointestinal disorders
Vomiting
10.0%
1/10 • Number of events 1 • 3 years 7 months
Blood and lymphatic system disorders
Hyperglycemia
10.0%
1/10 • Number of events 1 • 3 years 7 months
Blood and lymphatic system disorders
Hyperlipidemia
30.0%
3/10 • Number of events 3 • 3 years 7 months
Respiratory, thoracic and mediastinal disorders
Cough
20.0%
2/10 • Number of events 2 • 3 years 7 months

Additional Information

Srdan Verstovsek M.D./Associate Professor

The University of Texas M. D. Anderson Cancer Cent

Phone: 713-792-7305

Results disclosure agreements

  • Principal investigator is a sponsor employee
  • Publication restrictions are in place