Trial Outcomes & Findings for Pediatrics Testotoxicosis Study [Bicalutamide Anastrozole Treatment for Testotoxicosis] (NCT NCT00094328)

NCT ID: NCT00094328

Last Updated: 2018-06-26

Results Overview

Change in growth rate after 12 months relative to the growth rate during the ≥6 month pre-study period, based on raw height data (cm/year).

Recruitment status

COMPLETED

Study phase

PHASE2

Target enrollment

14 participants

Primary outcome timeframe

Assessed after 12 months treatment

Results posted on

2018-06-26

Participant Flow

The first patient was enrolled on 22 November 2004 and the last patient completed the 12 months visit on 7 May 2008. Patients were allocated treatment at 9 centres in 3 countries: India, the UK and the USA. Care for two patients, transferred from one US to a new approved US centre, therefore, patients were treated at 10 centres in total

Of the 24 patients enrolled, 10 failed eligibility criteria and were classed as screening failures while the remaining 14 patients were allocated treatment.

Participant milestones

Participant milestones
Measure
Open Label Bicalutamide With Anastrozole
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Overall Study
STARTED
14
Overall Study
COMPLETED
13
Overall Study
NOT COMPLETED
1

Reasons for withdrawal

Reasons for withdrawal
Measure
Open Label Bicalutamide With Anastrozole
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Overall Study
Lost to Follow-up
1

Baseline Characteristics

Pediatrics Testotoxicosis Study [Bicalutamide Anastrozole Treatment for Testotoxicosis]

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Open Label Bicalutamide With Anastrozole
n=14 Participants
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Age, Continuous
3.5 Years
n=99 Participants
Sex: Female, Male
Female
0 Participants
n=99 Participants
Sex: Female, Male
Male
14 Participants
n=99 Participants
Race/Ethnicity, Customized
Race · Caucasian
12 Participants
n=99 Participants
Race/Ethnicity, Customized
Race · Black
1 Participants
n=99 Participants
Race/Ethnicity, Customized
Race · Other
1 Participants
n=99 Participants
Race/Ethnicity, Customized
Ethnic group · Hispanic/Latino
1 Participants
n=99 Participants
Race/Ethnicity, Customized
Ethnic group · African/American
1 Participants
n=99 Participants
Race/Ethnicity, Customized
Ethnic group · Asian
3 Participants
n=99 Participants
Race/Ethnicity, Customized
Ethnic group · Not Applicable
9 Participants
n=99 Participants

PRIMARY outcome

Timeframe: Assessed after 12 months treatment

Population: All treated (AT) set

Change in growth rate after 12 months relative to the growth rate during the ≥6 month pre-study period, based on raw height data (cm/year).

Outcome measures

Outcome measures
Measure
Open Label Bicalutamide With Anastrozole
n=13 Participants
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Change in Growth Rate (cm/Year)
-1.62 cm/year
Standard Deviation 5.13

PRIMARY outcome

Timeframe: Assessed after 12 months treatment

Population: All treated (AT) set

Change in growth rate after 12 months relative to the growth rate during the ≥6 month pre-study period, calculated after adjustment for the chronological age of the patient (expressed as a standard deviation \[SD\] score).

Outcome measures

Outcome measures
Measure
Open Label Bicalutamide With Anastrozole
n=13 Participants
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Change in Growth Rate (SD Units)
-0.07 SD units
Standard Deviation 1.78

SECONDARY outcome

Timeframe: Assessed after 6 months treatment

Population: All treated (AT) set

Change in growth rate after 6 months of treatment relative to the growth rate during the ≥6 months pre-study period.

Outcome measures

Outcome measures
Measure
Open Label Bicalutamide With Anastrozole
n=13 Participants
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Change in Growth Rate (cm/Year)
-0.70 cm/year
Standard Deviation 5.77

SECONDARY outcome

Timeframe: Assessed after 6 months treatment

Population: All treated (AT) set

Change in growth rate after 6 months of treatment relative to the growth rate during the ≥6 months pre-study period.

Outcome measures

Outcome measures
Measure
Open Label Bicalutamide With Anastrozole
n=13 Participants
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Change in Growth Rate (SD Units)
-0.14 SD units
Standard Deviation 1.67

SECONDARY outcome

Timeframe: Assessed after 6 and 12 months treatment

Population: Calculated on All treated analysis set for those patients who had a 6-month pre study radiograph.

Radiographs were used to assess the bone age at ≥6 months pre-study, baseline, 6 and 12 months. The rate of change in bone age at baseline was calculated from a radiograph taken at least 6 months prior to study enrolment. The change in bone maturation after 6 months of treatment was calculated relative to the rate of change in bone age during the ≥ 6 months pre-study period.

Outcome measures

Outcome measures
Measure
Open Label Bicalutamide With Anastrozole
n=6 Participants
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Change in Bone Age Maturation Rate (cm/Year)
After 6 months treatment
-2.03 cm/year
Standard Deviation 0.38
Change in Bone Age Maturation Rate (cm/Year)
After 12 months treatment
-2.29 cm/year
Standard Deviation 0.51

SECONDARY outcome

Timeframe: Assessed after 6 and 12 months of treatment

Population: All treated (AT) set

Change in bone age to chronological age ratio after 6 and 12 months treatment relative to the baseline ratio for all patients.

Outcome measures

Outcome measures
Measure
Open Label Bicalutamide With Anastrozole
n=13 Participants
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Change in Bone Age to Chronological Age Ratio
After 6 months treatment
-0.09 Ratio
Standard Deviation 0.14
Change in Bone Age to Chronological Age Ratio
After 12 months treatment
-0.24 Ratio
Standard Deviation 0.18

SECONDARY outcome

Timeframe: Assessed after 3, 6, 9 and 12 months of treatment

Population: All treated (AT) set

The number of patients whose height lies between the 5th and 95th percentiles (using the percentile tables on the WHO database) for chronological age at the 12 month assessment.

Outcome measures

Outcome measures
Measure
Open Label Bicalutamide With Anastrozole
n=13 Participants
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Number of Patients With Height Between 5th and 95th Percentile
After 3 months treatment
3 Participants
Number of Patients With Height Between 5th and 95th Percentile
After 6 months treatment
3 Participants
Number of Patients With Height Between 5th and 95th Percentile
After 9 months treatment
3 Participants
Number of Patients With Height Between 5th and 95th Percentile
After 12 months treatment
3 Participants

SECONDARY outcome

Timeframe: Assessed after 12 months treatment

Population: Calculated on All treated analysis set, however, if bone age is less than 6 years or bone age is less than 7 years and bone age\>=(chronological age-1) then PAH cannot be calculated using the Bayley and Pinneau method.

Radiographs are used to assess the bone age, the change in predicted adult height (PAH) is calculated from the bone age using the Bayley and Pinneau Method. The change in PAH is be calculated by subtracting the PAH at baseline from the PAH at 12 months.

Outcome measures

Outcome measures
Measure
Open Label Bicalutamide With Anastrozole
n=9 Participants
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Change in Predicted Adult Height (PAH)
6.21 cm
Standard Deviation 3.93

SECONDARY outcome

Timeframe: Assessed after 6 and 12 months of treatment

Population: All treated (AT) set

Testicular volume of both testes was measured using either ultrasound or an orchidometer. Testicular volume was measured at baseline and at 6 and 12 months. The change in testicular volume from baseline was calculated for the left and right testicle as well as the average across both testes by subtracting the baseline volume from the volumes at 6 and 12 months within each patient.

Outcome measures

Outcome measures
Measure
Open Label Bicalutamide With Anastrozole
n=13 Participants
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Change in Average Testicular Volume
After 6 months treatment
1.46 mL
Standard Deviation 2.29
Change in Average Testicular Volume
After 12 months treatment
2.69 mL
Standard Deviation 2.51

Adverse Events

Open Label Bicalutamide With Anastrozole

Serious events: 0 serious events
Other events: 13 other events
Deaths: 0 deaths

Serious adverse events

Adverse event data not reported

Other adverse events

Other adverse events
Measure
Open Label Bicalutamide With Anastrozole
n=14 participants at risk
Patients with testotoxicosis (familial male-limited precocious puberty) were given study drugs (bicalutamide in combination with anastrozole) orally once-daily for 12 months. The dosing of bicalutamide and anastrozole was independently tailored for each patient.
Gastrointestinal disorders
Abdominal Pain
14.3%
2/14
Gastrointestinal disorders
Abdominal Pain Upper
7.1%
1/14
Skin and subcutaneous tissue disorders
Acne
14.3%
2/14
Investigations
Alanine Aminotransferase Increased
7.1%
1/14
Investigations
Aspartate Aminotransferase Increased
7.1%
1/14
General disorders
Asthenia
7.1%
1/14
Reproductive system and breast disorders
Breast Pain
7.1%
1/14
Reproductive system and breast disorders
Breast Tenderness
14.3%
2/14
Skin and subcutaneous tissue disorders
Cafe Au Lait Spots
7.1%
1/14
Eye disorders
Conjunctivitis
14.3%
2/14
Respiratory, thoracic and mediastinal disorders
Cough
7.1%
1/14
Infections and infestations
Croup Infectious
14.3%
2/14
Psychiatric disorders
Crying
7.1%
1/14
Metabolism and nutrition disorders
Decreased Appetite
7.1%
1/14
Gastrointestinal disorders
Diarrhoea
7.1%
1/14
Infections and infestations
Ear Infection
7.1%
1/14
Blood and lymphatic system disorders
Eosinophilia
7.1%
1/14
Injury, poisoning and procedural complications
Fall
7.1%
1/14
General disorders
Fatigue
7.1%
1/14
Infections and infestations
Furuncle
7.1%
1/14
Infections and infestations
Gastroenteritis
14.3%
2/14
Reproductive system and breast disorders
Gynaecomastia
50.0%
7/14
Nervous system disorders
Headache
21.4%
3/14
Infections and infestations
Labyrinthitis
7.1%
1/14
Infections and infestations
Lower Respiratory Tract Infection
7.1%
1/14
Blood and lymphatic system disorders
Lymphadenopathy
7.1%
1/14
Blood and lymphatic system disorders
Microcytosis
7.1%
1/14
Musculoskeletal and connective tissue disorders
Musculoskeletal Chest Pain
7.1%
1/14
Infections and infestations
Nasopharyngitis
14.3%
2/14
Gastrointestinal disorders
Nausea
14.3%
2/14
Infections and infestations
Otitis Externa
7.1%
1/14
Endocrine disorders
Precocious Puberty
42.9%
6/14
Infections and infestations
Pyoderma
7.1%
1/14
General disorders
Pyrexia
21.4%
3/14
Infections and infestations
Respiratory Tract Infection Viral
7.1%
1/14
Infections and infestations
Rhinitis
7.1%
1/14
Immune system disorders
Seasonal Allergy
7.1%
1/14
Infections and infestations
Sinusitis
7.1%
1/14
Skin and subcutaneous tissue disorders
Skin Hyperpigmentation
7.1%
1/14
Injury, poisoning and procedural complications
Skin Laceration
7.1%
1/14
Infections and infestations
Staphylococcal Abscess
7.1%
1/14
Respiratory, thoracic and mediastinal disorders
Stridor
7.1%
1/14
Injury, poisoning and procedural complications
Sunburn
7.1%
1/14
Infections and infestations
Tonsillitis
14.3%
2/14
Infections and infestations
Upper Respiratory Tract Infection
14.3%
2/14
Infections and infestations
Varicella
7.1%
1/14
Infections and infestations
Viral Infection
7.1%
1/14
Gastrointestinal disorders
Vomiting
35.7%
5/14

Additional Information

Gerard Lynch

AstraZeneca

Results disclosure agreements

  • Principal investigator is a sponsor employee The PI agrees to collaborate with AstraZeneca on the contents and formation of any publication or disclosure and to pay due consideration to comments and opinions offered. AstraZeneca have 60 days for final manuscript review and may require that submission for publication be delayed for a further 90 days in order to file patent applications.
  • Publication restrictions are in place

Restriction type: OTHER